Alive and Well with Huntington’s Disease

Spend next Wednesday evening with patients, researchers and clinicians who collaborate to understand Huntington’s disease. Patients with this genetic neural disorder struggle with muscle coordination plus their attention span, memory, reasoning, problem solving, decision making, language, learning and/or emotions.

On April 16 at 5 p.m., one of my patients and her daughter will share their challenges with Huntington’s disease, and I will highlight what our ongoing research reveals about the disorder. Following an audience question-and-answer session, we will screen Alive & Well at 5:45. This documentary depicts the courage of several Huntington’s disease patients who deal with how best to live their lives.

Everyone is welcome to this free event in the Goldman Conference Room of the Feinstein Institute of Medical Research. Refreshments will be served and valet parking will be available. Contact us for more information.

Do You Have Relatives with Huntington’s Disease?

If Huntington’s disease runs in your family, please consider the possibility of getting tested. An experienced counselor and geneticist can review test options with you and help you make the best decision.

It is impossible to predict when Huntington’s disease symptoms will develop. For this reason, the Movement Disorders Center recommends regular visits for both symptomatic and non-symptomatic individuals with the disorder–or those at risk for it. Specialists can monitor your condition and discuss any changes or potential treatments.

 

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